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| TASK FORCE CLEFT 2013, USA |
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| Task-Forces for 2013 International Cleft/CF Congress |
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Introduction
A series of task-forces were established by ST Lee prior to the Singapore Congress of the International Confederation for Cleft Lip and Palate and Related Craniofacial Anomalies. These task-forces reported their findings to that Congress without subsequent continuation or follow-up. It is the goal of the organizers of the 2013 Orlando Congress to reestablish the concept of task-forces with the intent that they would not only communicate their findings and recommendations to the attendees of that meeting but also to a wider audience via the internet and continue functioning, if indicated, through consecutive Congresses.
The task-forces for the 2013 Orlando Congress are derived from the “Objectives” of the International Confederation for Cleft Lip and Palate and Related Craniofacial Anomalies as enumerated in Section 2 of its constitution.
2.1 (B) Assisting and encouraging the establishment of internationally agreed standards and methods of assessment and documentation that will permit comparison of results of different methods of treatment worldwide.
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| 1. HOLISTIC OUTCOMES- |
| This task-force will consist of individuals who have experience with developing and/or validating holistic outcome measures for cleft care. The objective of this task-force will be to make recommendations for holistic outcome measures for cleft care that are independent of specific culture. |
| 2. SPEECH ASSESSMENT- |
This task-force will consist of individuals who have experience with developing and/or validating speech assessments, specifically focusing on velopharyngeal function, that are independent of language. The objective of this task-force will be to continue the development and expand the application of internationally applicable standardized “cleft” speech evaluation.
2.1 (C) Facilitating the establishment of multi-center trials and research projects.
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| 3. BEYOND EUROCLEFT- |
This task-force will consist of individuals from the European experience with cleft outcome studies (Scancleft, Eurocleft) and those who have initiated, or intend to initiate, similar studies in other geographic areas. The objective of this task-force will be to make recommendations for initiation of local and/or participation in multi-national cleft outcome studies.
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2.1 (D) Promotion and encouragement of multidisciplinary education and surgical support in areas of the world where cleft care is not yet comprehensive or universal.
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| 3. PALATOPLASTY IN THE SPEAKING UNREPAIRED CLEFT PALATE INDIVIDUAL- |
| This task-force will consist of individuals from the European experience with cleft outcome studies (Scancleft, Eurocleft) and those who have initiated, or intend to initiate, similar studies in other geographic areas. The objective of this task-force will be to make recommendations for initiation of local and/or participation in multi-national cleft outcome studies
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| 5. SPEECH THERAPY WITHOUT SPEECH THERAPISTS - |
| This task-force will consist of speech pathologists/therapists who have experience with establishing speech therapy programs for individuals with cleft palate in localities where no, or very few, trained speech pathologists/therapists are present. The objective of this task-force will be to provide suggestions for development of cleft speech programs where there is an absence or paucity of trained speech pathologists/therapists.
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| Force: PALATOPLASTY IN THE SPEAKING UNREPAIRED CLEFT PALATE INDIVIDUAL |
| Please contact each Task Force member to initiate the process (names and email address are below). We suggest the following scenario but leave the specifics to you as Chair. The end products (presentation at the Cleft 2013 meeting next May and a text report for the Congress Proceedings) are more important than the process. Having said that, we hope that you will encourage all members to participate so that the end products represent a spectrum of experiences and ideas from a variety of disciplines and geographies.
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| Suggested Scenario: |
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July 2012–Contact all Task Force members to inventory. |
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(A) Their demographic details [discipline, location] |
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(B) Their motivation for joining this specific Task Force |
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(C) Their experience with the focus of this specific Task Force |
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(D) Any ideas/suggestion each member has for the direction of this specific Task Force |
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AUGUST 2012–JANUARY 2013–Task Force member interaction by e-mail (or Skype or any other means of communication), at least monthly, to achieve the objective(s) of the specific Task Force. |
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FEBRUARY 2013–Task Force Chair prepares, in conjunction with members, and submits the specific Task Force Report for publication in the Cleft 2013 Congress Proceedings. |
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MAY 2013–Task Force Chair, and members as decided by Chair and members, |
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(A) Present their Report to the Congress attendees in General Session |
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(B)Attend a luncheon meeting for any Congress attendees interested in joining a Task Force for Cleft 2017. |
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| SPEECH ASSESSMENT |
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Please contact each Task Force member to initiate the process (names and email address are below). We suggest the following scenario but leave the specifics to you as Chair. The end products (presentation at the Cleft 2013 meeting next May and a text report for the Congress Proceedings) are more important than the process. Having said that, we hope that you will encourage all members to participate so that the end products represent a spectrum of experiences and ideas from a variety of disciplines and geographies. |
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| Suggested Scenario: |
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July 2012–Contact all Task Force members to inventory. |
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(A) Their demographic details [discipline, location] |
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(B) Their motivation for joining this specific Task Force |
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(C) Their experience with the focus of this specific Task Force |
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(D) Any ideas/suggestion each member has for the direction of this specific Task Force |
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(E) Any ideas/suggestion each member has for the organization of this specific Task Force. |
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AUGUST 2012–JANUARY 2013–Task Force member interaction by e-mail (or Skype or any other means of communication), at least monthly, to achieve the objective(s) of the specific Task Force. |
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FEBRUARY 2013–Task Force Chair prepares, in conjunction with members, and submits the specific Task Force Report for publication in the Cleft 2013 Congress Proceedings. |
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MAY 2013–Task Force Chair, and members as decided by Chair and members, |
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(A) Present their Report to the Congress attendees in General Session |
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(B)Attend a luncheon meeting for any Congress attendees interested in joining a Task Force for Cleft 2017.
Please feel free to contact us if you have any questions about this communication or concerns about the progress of your Task Force. |
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| BEYOND EUROCLEFT |
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Please contact each Task Force member to initiate the process (names and email address are below). We suggest the following scenario but leave the specifics to you as Chair. The end products (presentation at the Cleft 2013 meeting next May and a text report for the Congress Proceedings) are more important than the process. Having said that, we hope that you will encourage all members to participate so that the end products represent a spectrum of experiences and ideas from a variety of disciplines and geographies. |
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| Suggested Scenario: |
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July 2012–Contact all Task Force members to inventory. |
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|
|
|
(A) Their demographic details [discipline, location] |
|
(B) Their motivation for joining this specific Task Force |
|
(C) Their experience with the focus of this specific Task Force |
|
(D) Any ideas/suggestion each member has for the direction of this specific Task Force |
|
(E) Any ideas/suggestion each member has for the organization of this specific Task Force. |
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AUGUST 2012–JANUARY 2013–Task Force member interaction by e-mail (or Skype or any other means of communication), at least monthly, to achieve the objective(s) of the specific Task Force. |
|
FEBRUARY 2013–Task Force Chair prepares, in conjunction with members, and submits the specific Task Force Report for publication in the Cleft 2013 Congress Proceedings. |
|
MAY 2013–Task Force Chair, and members as decided by Chair and members, |
|
(A) Present their Report to the Congress attendees in General Session |
|
(B)Attend a luncheon meeting for any Congress attendees interested in joining a Task Force for Cleft 2017.
Please feel free to contact us if you have any questions about this communication or concerns about the progress of your Task Force. |
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